Jan 6th 2010
We woke up to a silent and motionless snowy white public holiday in Graz. Waking up and looking out the window felt like someone had been up all night wrapping the world in magic white velvet, waiting for someone to go outside and unwrap the amazing present that lay beneath. I went out first, well actually I was second, I found the fluffy kitty cat sitting on the stairs waiting for someone to let him in. The snow was pure and other than kitties paw prints, untouched. Stunning.
Yuval enjoyed touching the fluffy cold snow for the first time and the kiddies were pretty much indifferent.
We offered Tova food and water (via mouth) for breakfast. I think she had some sips and ate a little. It is really hard to tell as lots gets spat out. But she is letting us put food IN HER MOUTH! That is incredible.
The NZ family and the Sibony family wandered off through the snow white forest to the main hotel (it is about a 5 minute walk up the back of the property and literally through the forest) for breakfast. Nissim was his usual self and ate everything, this was his third breakfast for the day (and it was only 9am). It was a lot of fun and really nice to have a talk with the NZ family. Oh and on the way Yuval fell over in the snow holding Nizo. No one was hurt and it was kinda funny.
Play picnic was at 12. Both babies slept most of the walk to the hospital which was cute (see pic).
It is simply incredible to see the dramatic changes in many of the children. It has only been 3 days and other than cutting down feeding via the tube, NOTHING has been done, yet so much has happened. I can't understand how this extremely simple and amazingly effective process can't be done in Australia. There is nothing fancy about the hospital, the picnic is just done on the floor of an an empty room on bed sheets. Anyway..
Yuval and Tova sat down at the picnic and did their thing. The head doctor, Margureite was completely impressed by Yuval's brilliant way with children and told him he shouldn't be working with machines, his calling in life is to work with children! He is a fantastic dad, my kids are VERY lucky.
Tova has been astounding with food. She ate today for sure. Slowly, slowly it is happening. She isn't eating like Nissim yet, but she is on her way!
Today she hasn't had any PEG feeds. Her next PEG feed is at 8pm tonight while she is asleep. We now have to hide anything and everything tube related around the hotel, she isn't to know about any of it anymore! OMFG I have this overwhelming feeling that Tova is actually really going to eat, like for real. Also, she had real sips of water today too. This is madness! How can this be so simple? There has been not one tiny second of suffering... Hopefully it will stay this way! And to think that some really f*$#ing stupid therapists in Australia (not ones we see now) have said that Tova will never eat. IDIOTS! Scary to think these people are telling other parents that their kids will never eat and those families actually believe that to be true. I am glad we didn't fall for that nonsense!
The little princess I have previously mentioned, who hates food touching her was holding a piece of cake today. She wasn't actually eating it, but holding it is good. Apparently when she checked in she introduced herself to the doctors as "the princess that will not eat". She isn't tube fed, but she has never in her life eaten any solid food, she has only ever had small bottles of milk and uses dummies as a substitute. Today the doctors took all her dummies away, she got so mad she bit her self and is now covered in band-aids. Even though she is somewhat nuts she is absolutely adorable.
Nissim was too full from all his breakfasts to eat much today. Just one chocolate. He had fun watching other children play with food.
Well, we spent some time aimlessly wandering around in the snow then back to the Hotel as everything is closed in Graz on a public holiday and cafes aren't much fun as everyone smokes in them.
Margurite said there is a service at shull on Sat morning. Perhaps we will go to that.
I hope it snows again tonight.
Tova is amazing!