Hello Croup. Hello ER

2014-06-19

Hi croup. Not nice to see you!

Oh well. I had a feeling that it was too good to be true.... not being in hospital since January..

Tova slept a bit badly the night before last and ended up sleeping with me (yuval went and slept in her bed). But she was breathing fine and she woke happy.

Last night she woke crying again and came to my bed again, swapping beds with Yuval... again.. that was at about midnight. At 4am she woke with stupid breathing. There was no fresh pred in the fridge and no 24 hour chemist that I know of. ... So off to hospital. We went straight in and not long after Tova was given Pred. We are home again now 7am. Tova is happy, watching The Wizard of Oz - the original.

I imagine that if we had a fresh bottle of Pred we wouldn't have ended up in ER.

No school today for Tova. We will stay home together and keep warm n cozy.

Assignments and Walking

2014-06-07

I have an assignment due next week for my Auslan course. So, I'm procrastinating here. The assignment is pretty massive and boring not to mention written terribly, not my answers, but the questions. Tafe is quite different to uni. I remember assignments being hard at Uni, but not because they were written so terribly. This one is hard also because it requires so much research and i have a lack of interest in the subject matter. Some of it is interesting of course, I am a fan of lots-of-things-history, but the pressure is on and I just don't feel like writing about what I am reading. 

Some things that are interesting, The Deaf Community hate cochlear ear implants, especially if people opt to have two. I didn't know that, now I do.

Deaf people in history, way, way back were considered 'less than human'! 

AND - Hitler sent deaf people off to concentration camps, simply because they were deaf. 

Oh and another really odd one is that when society did decide that Deaf people were worth educating, there was a catch, they could only be taught by hearing teachers that could not sign, and no sign language was allowed. If a student tried to sign, they would have their hands either caned or tied behind their back, probably both at times too.. 

In other news. Tova's teacher wrote to me the day after I approved Tova wearing a helmet at lunch time (so she could walk around using canes, not her walking frame), without giving teachers heart attacks when she falls.. well the teacher said Tova walked all the way down the school corridor (which is long) before she decided that crawling was her preferred option. So, there is that! Which is completely astounding. 

I ordered canes at the beginning of the week after I was told that the funding for Tova's bike (over $1k) had fallen through for what ever reason. So they should be here (just the canes) some time next week. I hope. 

Nissim has been on school holidays all week, which has been nice for me to spend some time with him, just him and me! He is such a little dude. 

Horse Riding with RDA Harkaway

2014-06-04

Tova's teachers asked me today if during lunch Tova could wear a helmet in the playground. Hehe, that made me laugh, the reason is, Tova has started to be almost walking, more than ever before and they want her to stop using her walking frame and use just sticks (proper ones, not from trees obviously;.).

Sometimes in the playground she doesn't have 1:1 with a teacher, so a helmet will protect her head for her very likely falls.. funny, cute, amazing.

Well I recon horse riding with RDA Harkaway once a week has contributed to her success..  (Or could it be the combination of that and: conductive ed, stem cell treatment, hydro therapy, physio therapy, speech therapy, OT, Feldenchrist, bowen therapy, hbot, chiro, and every thing else that child does). If nothing else I love going out there once a week to pat those beautiful animals. I am in love with Jake the horse..

Not sure if I mentioned last time, but we went to see 42nd Street, Me, Tova, Nissim and my mum. Tova LLOOVVEEDD it. She loves everything music. 

Sticks and Frames

2014-05-20

There has been no hospital since Adelaide - that is since January! Which is incredible. 

I'd love to take Tova back to Ability Camp. And perhaps we will, I guess it all comes down to money. We are also hoping to go back to the Adelaide program in January 2015, fingers crossed!

Both kids are loving school. Both kids are doing well at school!

I'm trying to get Tova some new canes, it has taken ages. Hopefully they will arrive soon. 

Tova has been loving walking around in her frame, she has had it for years, and has always used it, but now for some reason she is excited when she uses it. 

She has become quite amazing at walking while holding one adult hand too, that is fun, slow but fun. I can see that walking isn't too far away. She most certainly wants and tries to walk. 

The bike we want for Tova may or may not happen, that too is because of money. Special needs bikes are crazy expensive eg: $3k.

Tova has been focused this year, possibly something to do with all the therapy she has been having. 

Nissim is doing well with learning English, Hebrew and Auslan. 

Yuval and I have been learning Cert 2 - Auslan at Tafe this year, and are enjoying it. It is hard to imagine that we will ever be fluent. 

One incredible fact that I would like to share. Each Tuesday Tova comes with me to drop Nissim off at his school, it is a small school, with pretty much no parking on a tiny street and is always chaos at drop off times. There is one disable parking spot out the front of the school and about 10 regular spots. Every Tuesday I aim to park in the disabled parking spot and every Tuesday it is available. There are parents and carers parked everywhere in that street, but that one spot is always free. That is almost unheard of. I am so impressed.  And yes, Tova has a disabled parking permit which is stuck in my car for those who are wondering.  It is very good to see the respect the community have for people that need that spot. Especially as most parents don't get out of the cars, they just let the kids out and drive off, so it would be very easy to just stop in that parking spot for those few minutes. But they don't!! Which is WONDERFUL! It is so helpful. 

School Term 1 Done.

2014-04-08

It has been a while. 
Tova has been well, and when she hasn't, she has stayed home. 

Tova is now on school holidays, term one of grade one done. Amazing. 

Nissim still has the rest of this week before he is on holidays. He is loving prep and he and Tova have been doing homework together. Tova is more advanced with reading than Nissim so she helps him know when he gets words wrong etc, and Nissim tests her reading too. It is very cute to watch. 

All the therapy that Tova has been having seems to be doing amazing things. She is so focused and progressing with everything. 

Today she had a hearing test, if she had fluid on her ears she would have had grommets next week. But nope, there is none.. so no surgery! Not that I would have actually gone ahead with the grommets, but at least now I am not made to feel guilty. I just know that it is the chiro that has cleared up her ears. Hearing test before chiro = fluid, every hearing test since seeing chiro (she sees him every week or $o), the fluid has been less and less. Amazing. Truly amazing.